Calendar

  • REGIONAL MEETINGS ALLIANCE RARE DISEASES

    From 14/03/2025 to 21/11/2025 from 14:00 at 19:00

    Free

    Are you a patient, a caregiver, a representative of a patients association? Let's talk about it! Together let's give visibility to the fight against ...

  • GENERAL ASSEMBLY OF THE ASSOCIATION

    On 30/10/2025 from 19:00 at 20:00

    Reports and projects

    Board of Directors election

    online via video conference (Zoom)

  • MEDICAL DAY

    On 06/12/2025 from 08:30 at 17:00

    PARIS

    Full program coming soon

  • WALK FOR RARE DESEASES

    On 06/12/2025 at 14:00

    PARIS

    As part of the Theleton, to give visibility to rare deseases

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