Calendar
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REGIONAL MEETINGS ALLIANCE RARE DISEASES
From 14/03/2025 to 21/11/2025 from 14:00 at 19:00
Are you a patient, a caregiver, a representative of a patients association? Let's talk about it! Together let's give visibility to the fight against ...
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GENERAL ASSEMBLY OF THE ASSOCIATION
On 30/10/2025 from 19:00 at 20:00
Reports and projects
Board of Directors election
online via video conference (Zoom)
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WALK FOR RARE DESEASES
On 06/12/2025 at 14:00
As part of the Theleton, to give visibility to rare deseases